I have gained so much knowledge
after interviewing two teachers who work in Special Education. I explained that
my topic was autism, and they both offered plenty of information.
The first teacher who I interviewed
works with 3 and 4 year old children who have autism and works in a
self-contained setting. She believes that there are several issues in autism
which include diets, sensory needs, education, least restrictive environments(LRE),
communication, and transitioning.
She said that one of the
biggest problems she encounters is that the parents of her students do not
understand or remain consistent with the way that she approaches their child's
behaviors at school. As a teacher, she tries to educate the parents as much as she
can, but the district does not allow them to have home programs in which they
can help them in the home setting.
Another major issue that the first teacher
mentioned is that the clinic team that assesses and places students does not
seem to have a good grasp on what her classroom is all about. She actually has
been getting some students that could have benefited from a less restricted
environment but she cannot tell a parent that when a child enters her room. The
only thing she can do is bump up their skills and send them on to an early
childhood class the next year.
The second teacher who I interviewed
works with 5th-8th graders who have autism. She feels
that the most important thing for people to remember about autism is that there is not a
cure to it, but those affected with Autism can grow, improve and progress. She
understands that not all students will progress the same. Not all students will talk or be able to move
out on their own. She feels that one of
the biggest issues with autism is the misconceptions. She thinks that it is sad
that parents think that vaccines cause Autism.
There is no proof of this and no study to confirm this. It is important for doctors to educate their
patients and parents of children on this misconception and the importance of
vaccinations, especially in our modern, global society in which we exist. Next, she thinks that it is essential that
parents understand the necessity of getting their child into therapy or school
as soon as they receive a diagnosis for Autism.
It is essential that all parents get their children screened at two or
three years old to help catch any disabilities.
Finally, she thinks that one of the most important topics people need to
know more about and be educated greatly on is how to deal with behaviors. She believes that parents need to be trained
on this, work hand in hand with counselors, social workers, teachers, anyone on
their child’s team, to create a cohesive and structured behavioral plan to help
the child learn what are appropriate and acceptable behaviors and what are
not.
.
These
interviews helped me tremendously! I already knew which topic I wanted to chose
because I am so passionate about it. However, there is so much more that I
would like to learn before I put an advocacy plan in place. The first and
foremost thing that I want to focus on is the assessment and placement process.
This is extremely important, not only for the children, but the teachers as
well. It’s only fair to place the child in the correct classroom so they can
receive the proper education. Both teachers seemed very concerned with making
sure the parents receive the proper trainings and gain knowledge about autism.
The other issue is funding. Without the proper funding, it is hard for parents
to get the help that they deserve.
After interviewing both teachers, I’ve
decided to focus my paper on autism. Three additional topics are Assessing/Placement, Family Resources/Educating Parents, and Funding.
Questions I have for my colleagues
related to this area of interest are:
Does anyone work at school that assesses
and places children? If so, how do you feel their accuracy is? Do you feel that
an hour evaluation is long enough to determine the fate of your child?
Does anyone know of any good resources
for parents of children with autism?
Where could these parents go for help
with their home life? How can they reciev additional services if they can not
afford it?
A good resources is Tuesday child I believe their outsources in part of Chicago and other parts of the water
ReplyDeleteHello Christy,
ReplyDeleteI really enjoyed reading your interviews. My son was recently diagnosed with Pervasive Development Disorder which is a mild form of autism. The teachers that you interviewed mentioned several issues that I am currently dealing with. Understanding autism has been a big issue for me and finding help has been even more difficult. Dealing with placement process, insurance, and his behaviors which tend to be different, but at times can be very difficult. Time consuming would be an understatement, as I am learning first hand, what it feels like to advocate for a child with special needs. I am truly looking forward to reading and learning more about autism. My son is currently receiving treatment at Therapediatrics in Vernon Hills - you can check out their website http://www.therapediatrics.com/. You may also find information at KGH - http://www.kghconsultation.org/index.php
Thanks Catherine for the resource. I will be sure to look at it and to see what information I can use.
DeleteHello Vertina,
I'm glad you enjoyed my blog! Hopefully my blogs can provide you with some valuable insights to help you throughout your journey. The journey might seem long and exhausting, but it's worth it in the long run! Keep your head up and keep fighting for your child! :)
Hello Christy,
ReplyDeleteI see that you are an advocate for children with Autism. in one of my former classes I had a child with autism. I am so glad that it wasn't severe. The parent asked if I would attend the meetings and trainings that were scheduled for her. Upon attending the trainings and the meetings the parent and I were given instructions how to work with her child one on one.
In the classroom the child needed adaptations as well as modifications, which we provided. The mother stated that she knew that something was wrong with her child after three months. it took the doctors until the child was almost four years of age to diagnose the child with Autism. I know the parents journey as well as her pain, I am glad to see that you have chosen this area for your advocacy plan.
Hi Monica,
DeleteI think that it is great that you attended meetings and trainings to learn more about autism. There is a boy in my class who has autism and attends daycare after our school. The workers at the daycare don't have any training dealing with kids with autism. They don't have any clue what to do with him. I don't think that is fair for the child or his parents. He deserves to be treated the appropriate way and to receive the proper care. If the daycare workers would receive the proper training, then they can adapt the classroom for children with special needs.
I think that it is so sad that it took them that long to diagnose the child. I understand that it's hard when they are young, but it should have been done earlier than 4 years old.
Hi Christy,
ReplyDeleteI think that it is important that you mentioned that there is no cure for autism. You are correct that parents receive all kinds of information and gimmicks to cure their child and they become confused, hopeful, and discouraged all at the same time. I think that there are parent groups available for support, I know there is in my relatively small town. I would look into that so that it can be a resource for the parents that you come in contact with. Also, having a school psychologist on staff will help the parents better understand what is happening with their child and how they can help them.
You asked if an hour was long enough to view a child and diagnose them and I feel that it is not. I am focusing my paper on early intervention and this can correlate directly with children with autism. I think that it can take a while to get the ball rolling and all that is wasted is precious time. In the case of autism, I think that there should be more than one hour of interaction before a diagnosis is made especially if what your interviewee said is accurate: that autism diagnoses are on the rise. Having a therapist or team of therapists work with the child for a longer amount of time will give them a better idea of the child's true condition. My feeling is evaluate and work with the child in a swifter manner and then take time in diagnosing. Good luck on your paper.
Michelle
Hi Michelle,
DeleteI'm glad that you agree with me that an hour is not long enough to assess a child and figure out their placement. It should be at least 2 or 3 hours and could even be on different days. Who knows, the child could be crabby one day and doesn't want to talk or play. That doesn't give the team a right to place their child based on that. I know that the team is highly educated and knows what they are doing, however, the process needs to be more thorough. ADD and ADHD have some of the same characteristics as autism. It could be easy to misdiagnose because they are so similar. Schooling is so important for all of these children and they need to be placed in the correct place.
Christy- You chose a very good subject and I think you are going to find some very interesting things about children with Autism, they are unique children that seem to be very intelligent in their own ways. When reading your post, one of the statements that you made really caught my attention "As a teacher, she tries to educate the parents as much as she can, but the district does not allow them to have home programs in which they can help them in the home setting." I'm sure you can agree with me and say that it would really help if teachers could do this because parents need more resources and hands on training because it can very frustrating as a parent to care for a child with Autism. Maybe this is something that will change very soon, and you can be advocate for.
ReplyDeleteTracy,
DeleteI would love to be able to change this and advocate for it. Home programs are extremely important to the child and the parents. I can't imagine being a parent of a child with autism and not knowing anything about it. I've worked with these children for 6 years now and I feel like I know a tremendous amount about it. I know that they like structure and strive on it. They also like picture schedules so they can see what comes next. These parents can benefit so much by knowing this and using these same strategies in their house. It's hard to explain it to them without actually physically showing them. Teachers should be able to do a home visit and show them how to do certain things. Some of these poor parents are pulling their hair out at home because they literally have no idea what to do with their child. Alot of the parents won't even take their child out in public because they are afraid of how they are going to act. That just makes me so sad. If the child had a picture schedule of where they were going then maybe their outing could be different. I just really hope I have a voice loud enough that people will hear and I can make a difference! :)
Butler_Anissa_Second Blog Response_Christy_- christylamackiautism.blogspot.com
ReplyDeleteHello Christy,
Austim is a really popular topic right now that too many students are being diagnosed with it. Autism is very common in young children, and require additional services from their school site. Some students have Austim requires assistive technology to communicate with others. The two teachers you interviewed were they from the public school system. The issues you listed Christy is a major concern, and it can set back these back entire day. It is difficult to get these students back on track for the rest of the day.
Parents do not understand it is difficult to get children with learning disabilities back on their regular routine. I know parents are thinking in the best interested of their children, and making sure their needs are being met. Parents can sometimes be working against their child’s when comes their teacher. For example, the teacher has put in place new routine where the child is able to take care their own personal care needs. The parents do not enforce this new routine at home, and they do everything for the children. The teacher has to go back work with that child again in restoring that independence. Your three additional choices are very good, and you must find a way to narrow it down.
I do not feel one hour is not enough time to perform a full assessment of a student. I think a detail assessment should be the person observing the child during their daily routine. An assessment should take at least about a week to fully assess every aspect of the child.
Hello Anissa,
DeleteI agree with you when you said that if parents don't put in place what the teacher is working on then the parents are working against them. I have an example for you. There is one parent who wants her son potty trained. She expects us to do everything at school to get him potty trained but doesn't follow through with it at home. So that brings us back to square one the next day. Teachers and parents need to be on the same page at all times. This is especially important for the child, so they aren't confused.
Christy,
ReplyDeleteI am a little surprised that the teacher you interviewed felt 'diet' was a possible cause of autism. I know a lot of parents have their children on gluten free diets however I am not convinced and the research is still very inconclusive regarding this topic. I agree that children are being diagnosed earlier and earlier however I agree that autism is a handicapping condition where school districts and funding will be appropriated for children under 3 years of age and we all know that early intervention is imperative to improve a child's deficiencies.
Sisie,
ReplyDeleteI must say that I agree with you 100% when you say that the diets are inconclusive. I understand that parents want to try everything for their child to help them. However, I don't feel like they should say that the diet is "curing" their child. I've seen several children on the diet and haven't noticed a change. And if there is a slight change over time, then it could just be because the child is getting older and maturing. Or there could be improvements because the child is in school full time going through extensive therapy. Who knows if we will ever know what causes it or cures it. The only thing that is important is helping these children feel like they are a part of society and and that they belong. They have rights just like everyone else. So instead of trying to "cure" them, parents need to just love them and be thankful for every second with them.
Hi Christy;
ReplyDeleteI really like your topic about Autism, I don't have a lot of experiences on the topic but I had a boy with mild autism, and his mom was very involve in finding the best services for him. He used to go to a 3 hrs autism program, then he was back to our center, we knew whar he liked to play with so we had everything ready for him. He was diagnosed before he came to the program. When I went to the library I saw a link related to autism, so if you check maybe you can find helpful information there.
Hi Eloisa!
ReplyDeleteI think that it is great that you had everything ready for the child when he came to you. It is always important to try to figure out the child's wants and needs to make his school experience as pleasurable as possible.